Call to action

For Physicians

• Evaluate evidence-based complementary therapeutic approaches
• Contribute your clinical insights on financial orphan treatments
• Discuss and consider financial orphan treatment options with patients
• Support clinical research on financial orphans through trial participation
• Join our expert advisory panel to evaluate financial orphan therapies and help design studies
• Encourage your patients to share their clinical data via our patient registry

For Patients

• Advance research by sharing your clinical data in our patient registry
• Discuss financial orphan treatment options with your healthcare team
• Share your ideas and experiences with financial orphans to help advance therapeutic research